Your Identity as a Parent
Something broke inside of me when he died.
The bereaved parents of a baby son who was born with Arteriovenous Malformation (AVM) and died at age 3 months, talk about how they think of, hold, and cope with their loss. “You have to be present in the room and experience your child actually dying to understand that feeling but you do lose a very large part of your sense of self and safety and understanding of just who you are in the world and I think even lost in the sense of understanding what the world is because a lot of that has been thrown into question for us.”
1 / 19
Something broke inside of me when he died.
Our son and this experience still push us to rise and be the most actualized versions of ourselves possible.
“You do learn these incredibly profound lessons and I think that we have a responsibility to share that.”
Bereavement: This is very isolating. You don’t wake up and forget. We are holding on to what we know.
Parents worry about the impact of child death on the staff
When the child that is sick is the parents’ only child
Parenting a Medically Complex Child: Becoming my son's advocate
Sanfilippo /MPS: The dreaded question. How many children do you have?
Give yourself permission to go on with your life.
I still talk to my network all the time.
It’s another sort of loss.
I’m most proud …
Everyone has their stuff.
A bereaved father on the pressure parents feel to be changed to perfect.
I’ve learned …
I’m proud of keeping it positive.
Each small step moves you forward into finding that meaning for you.
She’s made me proud.
