The Beginning
Tay-Sachs, Twin fathers and their diagnostic journey with their two children
Charlie and Tim Lord, twins, and fathers of Cameron and Hayden respectively, talk about the diagnostic journey. Both Cameron and Hayden had infantile Tay-Sachs. Hayden was one year older than Cameron and diagnosed 3 weeks before Cameron. Hayden died 5 months before Cameron.
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Tay-Sachs, Twin fathers and their diagnostic journey with their two children
A New Diagnosis: Finding Your Bearings
Docs didn’t look at the Whole Child: It took a year to get the Hurler diagnosis.
The Shock of learning the diagnosis
