Diagnosis: Anticipatory Grief
Apnea, aspiration: Suddenly learning my baby is having trouble breathing, and we don’t know why
A mother of an infant with serious apnea and aspiration describes the shock of learning that her baby is having trouble swallowing, and then breathing. “I wasn’t prepared at all for what the swallow study would reveal … and then the oximeter.” It was the moment that everything changed. Her ENT nurse and pediatric surgeon talk about sometimes providers don’t have an answer for why, and how important it is that parents not feel guilt.