Good Care for Sick Children is a Non-Partisan Issue.

Yesterday was a really sad day on Capitol Hill and for our country. And we are so so sorry. Again.

It is hard to move beyond it.

And yet in this pause and moment of unity, Congress continues and our representatives need to hear from us about an issue that everyone can agree upon: pediatric palliative care and how it makes such a positive difference in the experiences of families caring for children with serious illness.

Today we’re joining with more than 40 organizations for a massive social media day of action, to pass the Palliative Care Hospice Education and Training Act, H.R. 1676 and S. 693. The legislation would bolster these services for patients, and would train more doctors on how to effectively provide it.
Here is what you can do to help.

We know lawmakers pay attention to Twitter. Just imagine the impact we’ll have today when tens of thousands of us  are tweeting Congress on the same day.

#1 — Tweet at Reps. Pallone and Walden asking for a markup on the bill. See below for the Twitter handles and suggested message.

#2 — Second: Tweet at those members of Congress who are on the Quality of Life Coalition list AND specifically care about pediatric issues. See below for Twitter handles and suggested message.

We all do what we can. This is one of those moments.


Blyth and Courageous Parents Network


Suggested Message: @YOURLAWMAKER Please help me & other parents by supporting #PCHETA, improve our family’s quality of life #HR1676/#S693

Twitter Handles — 





Everything you need to know about the proposed bill is here on the Patient Quality of Life Coalition’s Web site.

Courageous Parents Network is proud to partner with a growing group of professional organizations who are contributing a lot of time and resources to this effort on behalf of patients and their families. They know first-hand the value of palliative and hospice care.

WATCH courageous parents talk about the impact that palliative care made on their child’s illness journey, the decisions they made on their child’s behalf, and their family’s experience.