CPN is collaborating with Kim Mooney-Doyle, PhD, RN, CPNP-AC and Assistant Professor in the Department of Family and Community Health at the University of Maryland to conduct a photovoice study with siblings and parents to understand their experiences, especially around family communication. Kim is a pediatric nurse and researcher who is interested in family health and of course, CPN is all about family health and well-being.
What is a Photovoice Study? And Why Use Photos?
It is a visual research method that puts cameras into the participants’ hands to help them to document, reflect upon, and communicate issues of concern. Researchers use photos because they often can tell a story that cannot be captured in words.
How does this photovoice study work?
For this study, you will be mailed a camera and have 2 weeks to document through photos the answers to specific questions. It is anticipated that you will take an average of 20 photos. You then mail your camera using a pre-stamped envelope back to the researcher. Once your photos are submitted, you will have a call to tell Professor Mooney-Doyle about what each photo means to you.
Who can participate in this study?
The study is specifically interested in learning from families who are currently caring for a seriously ill child. The specific inclusion criteria are:
For Parent Participants:
- parent or primary caregiver to a seriously ill child, adolescent, or young adult
- parent to a half, full, or adopted sibling of the seriously ill child
- parent is at least 18 years old and English-speaking
For Sibling Participants
- half, full, or adopted sibling of the seriously ill child
- adolescent or young adult sibling is 12-24 years old and English-speaking
How do I enroll in the study?
Contact Kim Mooney-Doyle at firstname.lastname@example.org
Learn more about the study: PhotoStudyFinal