6/26/2019 Featured Post Reflections on Adult ParentingFirst published on The Dravet Syndrome Foundation site, June 21, 2019. Barb and John were…
By Parents For Parents - Why We Do This & What We LoveFrom the beginning, Courageous Parents Network has been BY Parents, FOR Parents caring for seriously…
Welcome CPN's Blogger in ResidenceJoin us in welcoming Caryn Anthony, our first Blogger in Residence. A thoughtful observer and…
Reflections of a Pediatric Palliative Care NPI retired from nursing two years ago after 40+ years, first in pediatric oncology and…
An Invitation to Channel Your Experience for ResearchTwo weeks ago, Courageous Parents Network visited 5 children’s hospitals in Ohio. We participated in…
Ian Decides: A Mother Shares How Her Son Participated in Decisions About His CareMany pediatric life-limiting diseases include a neurological developmental component. Parents of these children are often…
The Other Side of InnocenceWhen I was pregnant with my fourth child and only daughter, Miriam, I bought a…
Quietly Essential: A Father’s Loving WayTo the outside world, my role as mother for my son Robby was clear while…
A Sister Outside the Inner Circle but Close to the HeartAs a mother, I am both proud and sad when I think of the life…
