Theme: Orienting to the Hospital

Her medical team knows what we’ve been through a…

Tips for providers: assess the scene; don’t just…

Getting out and walking was a saving grace.

My grief was exacerbated by the trauma of being in…

“I internalized that to be competent meant not t…

From diagnosis to death: “It was 8 months of an …

Cardiomyopathy: A mom on arriving on the cardiac f…

Self-Care: Providers will encourage parents to get…

Parents feel pressure to be “liked” by their c…

For Providers—Ask families about their life OUTS…

The hospital is like a foreign land

It’s hard to know which doctor is in charge.