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Media Library Navigating Medical Complexity Coping With Loss

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Home > All Videos > Videos: Clinical Trial: Emotions

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Theme: Clinical Trial: Emotions

Clinical Trials: A mom: I didn’t worry about disease progression then and I don’t post trial.

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Clinical Trials: A mom: I didn’t worry about disease progression then and I don’t post trial.

Clinical Trials: A mom: I didn’t worry about disease progression then and I don’t post trial.

In this video, a mother of two sons with Duchenne Muscular Dystrophy, both of whom now receive drug treatments, explains how she did not really worry about the disease progression; how there were no guarantees in expected timelines pre-treatment and there are none post. She also talks about her son’s peers dying and the guilt associated with participating in a trial.

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