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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Hear from and learn from fellow parents and clinicians in videos, guides and blog posts.

104 resources found

Palliative-care Clear All

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Palliative-care

104 resources found

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2025 Parent Champion Kelsey Stanczyk, parent of Stella

2025 Parent Champion Kelsey Stanczyk, parent of Stella

2025 Parent Champion Aisling Melton, parent of Éabha

2025 Parent Champion Aisling Melton, parent of Éabha

A patient family encounter that grew me as physician: I learned “to serve as a vessel, to be a container, for their reality.”

A patient family encounter that grew me as physician: I learned “to serve as a vessel, to be a container, ...

An MD on how she meets a family for the first time: “Being genuine in my presence and extending an invitation for people to share with me who they are.”

An MD on how she meets a family for the first time: “Being genuine in my presence and extending an invitat...

A physician on her decision to pursue Pediatric Palliative Care: “When you’re caring for children, you’re also caring about what’s happening in their community.”

A physician on her decision to pursue Pediatric Palliative Care: “When you’re caring for children, you�...

Mejorando la Experiencia de los Cuidados Oncológicos Pediátricos Mediante Cuido Paliativo

Mejorando la Experiencia de los Cuidados Oncológicos Pediátricos Mediante Cuido Paliativo

Improving the Pediatric Cancer Care Experience with Palliative Support

Improving the Pediatric Cancer Care Experience with Palliative Support

A prenatal diagnosis of heterotaxy: how palliative care helped parents continue the pregnancy and manage uncertainty

A prenatal diagnosis of heterotaxy: how palliative care helped parents continue the pregnancy and manage unc...

“We didn’t think we would leave the hospital [following his birth].”

“We didn’t think we would leave the hospital [following his birth].”

Perinatal palliative care “got to know us and really heard our hearts. They counseled us through the birth practices.”

Perinatal palliative care “got to know us and really heard our hearts. They counseled us through the birth...

Decision-making about quality of life, with no judgement: “The medical field has advancements that our ethics haven’t quite caught up with.”

Decision-making about quality of life, with no judgement: “The medical field has advancements that our eth...

Decision-making about a trach for my son: palliative care appreciates that it can be a loving decision not to do everything.

Decision-making about a trach for my son: palliative care appreciates that it can be a loving decision not t...