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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Hear from and learn from fellow parents and clinicians in videos, guides and blog posts.

164 resources found

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Palliative-care

164 resources found

Page: 10 of 14

Child Life and setting expectations: It is not about ‘fixing’ the kids. It is about quality of life.

Child Life and setting expectations: It is not about ‘fixing’ the kids. It is about quality of life.

Baby Steps and Never Judged Decisions

Baby Steps and Never Judged Decisions

Introducción a los Cuidados Paliativos Pedátricos

Introducción a los Cuidados Paliativos Pedátricos

Podcast: Sarah – a genetic diagnosis and palliative care

Podcast: Sarah – a genetic diagnosis and palliative care

Palliative Care Gives Parents Another Way to Protect Their Child and Be Heroic

Palliative Care Gives Parents Another Way to Protect Their Child and Be Heroic

We were actively protecting her from things that wouldn’t be right for her.

We were actively protecting her from things that wouldn’t be right for her.

Mothers are Warriors. But Some Battles Can’t Be Won.

Mothers are Warriors. But Some Battles Can’t Be Won.

Once we understood what it was, we got on board pretty quickly.

Once we understood what it was, we got on board pretty quickly.

From a Palliative Care Nurse

From a Palliative Care Nurse

A Thank You to My Son’s Palliative Care Volunteer

A Thank You to My Son’s Palliative Care Volunteer

I have learned that families are living, usually thriving, in the face of serious illness.

I have learned that families are living, usually thriving, in the face of serious illness.

Palliative Care made it possible for us to go home and live.

Palliative Care made it possible for us to go home and live.

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