Theme: Siblings

Parenting a medically complex child and keeping the adult-age sister involved.

Page: 2 of 6

Parenting a medically complex child and keeping the adult-age sister involved.

June MSW, LICSW, ACHP-SW — mother of Katie (28), who is medically complex and likely has Rett Syndrome — and Alissa (23), talks about how she is introducing Alissa to some of Katie’s systems of care and legal documents because she is an integral part of Katie’s life.. “though I don’t want her to ever feel responsible for Katie’s care.”