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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Pediatric palliative care benefits

Palliative care helps reframe interventions like feeding tubes.

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Palliative care helps reframe interventions like feeding tubes.

Palliative care helps reframe interventions like feeding tubes.

Parents of a son with SanFilippo Syndrome and their palliative care doctor discuss how they evaluated whether to give Ben a feeding tube. “Doctors go straight from A to B and they don’t talk about what’s in-between.” Palliative care hears all your questions and helps you filter down to the most important things.

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