Theme: Neurology
A pediatric neurologist specializing in children with serious neurological impairment discusses using the notion of a good day to think about what is working for both the family and the child and the balance of risk, regret, and sacrifice.
Theme: Neurology
A pediatric neurologist specializing in children with serious neurological impairment discusses combatting uncertainty with what is known and focusing on pieces of information and milestones that can speak to the larger picture.
Theme: Neurology
A pediatric neurologist specializing in children with serious neurological impairment discusses using the notion of reversibility to think through any decisions that are being made about a child’s medical care and refocusing on the comfort of the child as the center of those decisions.
Theme: Neurology
A pediatric neurologist specializing in children with serious neurological impairment discusses how pediatric dementia looks different for every child and can change based on physical and mental milestones and backslide.
Theme: Neurology
A pediatric neurologist specializing in children with serious neurological impairment talks about the importance of understanding all the implications of smaller issues within the larger context of the human body to avoid surprises.
Theme: Neurology
From a pediatric neurologist specializing in children with serious neurological impairment: “A lot of families feel outraged that we can’t get things dialed in more precisely and quickly …. But at the end of the day, we’re left with the human-to-human endeavor that we call medicine”
Theme: Neurology
A pediatric neurologist specializing in children with serious neurological impairment discusses looking at both the causes and symptoms of the seizure as well as the emotional layers included in the experience of seizures.
Theme: Neurology
A pediatric neurologist specializing in children with serious neurological impairment discusses ensuring that parents are giving themselves rest as caregivers. The parent is the most connected with their child and needs breaks to sustain that attention.
Theme: Neurology
A pediatric neurologist on validating for parents how their situation isn’t normal. “This isn’t how most people live.” And ensuring that clinicians are focusing on specific ways to help families rather than asking them if they are getting generalized support.
Theme: Neurology
A pediatric neurologist specializing in children with serious neurological impairment discusses balancing future hopes for a child and ensuring that parents are also staying present and focusing on what is happening with their child now.
Theme: Neurology
A pediatric neurologist specializing in children with serious neurological impairment discusses something she calls the jar analogy which helps parents think about what matters most to them and their child in making every day as good as it can be. The big rocks are the big priorities.