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Media Library Navigating Medical Complexity Coping With Loss

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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

Home > All Videos > Videos: Goals of Care

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Theme: Goals of Care

A Mom reflects on when quality of life bumped into quantity: We asked, “What are we doing?”

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A Mom reflects on when quality of life bumped into quantity: We asked, “What are we doing?”

A Mom reflects on when quality of life bumped into quantity: We asked, “What are we doing?”

In this Zoom interview with CPN, Michelle — mother of Alex (age 7) and Julianna, who had a severe form of Charcot-Marie-Tooth disease and died at age 5 — shares the progressive complications that came with Julianna’s condition and trade-offs they had to wrestle with.

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