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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Goals of Care

Twin brothers, two children with Tay-Sachs: Considering care decisions together.

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Twin brothers, two children with Tay-Sachs: Considering care decisions together.

Twin brothers, two children with Tay-Sachs: Considering care decisions together.

Creating a safe place to explore decisions together. No judgement.

Charlie and Tim Lord, twins, and fathers of Cameron and Hayden respectively, talk about how they and their wives talked often together about their care goals and values for their children and gave each other space to make their own decisions. It was so comforting to be able to talk with each other free of judgement.

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