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A Rare Diagnosis: “I knew he wasn’t ...
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Regret re decision-making about interven...
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“It was a journey of contradictions.�...
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Finding the way forward: “Giving her t...
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Evolving as parents: from feeling shocke...
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Dropping the illusion of control: Shifti...
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Clinical Psychology: children don’...
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“We should talk.” Advance Ca...
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Marfan Syndrome: He had 26 doctors and s...
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A cardiac heart failure MD: Having goals...
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A mom: I am finding my own way. I like t...
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Before you order a (swallow) test, ask �...
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Video
Theme: Goals of Care
A Rare Diagnosis: “I knew he wasn’t going to be the exception . . . I had to connect the dots. No one else did that for me. But then on the backside, clinicians said, I would have made the same decision.”
Page: 2 of 7

A Rare Diagnosis: “I knew he wasn’t going to be the exception . . . I had to connect the dots. No one else did that for me. But then on the backside, clinicians said, I would have made the same decision.”
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