Newsletter Signup Contact Donate

Courageous Parents Network

About

Initiatives

Contact Donate Newsletter Signup

Search entire library or by microsite

Media Library

Navigating Medical Complexity Coping With Loss Neurojourney

Search

Search entire library or by microsite

Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

Home > Feeding Tubes > Themes

SHARE

Videos

SHARE

Theme: Feeding Tubes

A Mom on deciding about a feeding tube for her child

Page: 1 of 2

A Mom on deciding about a feeding tube for her child

A Mom on deciding about a feeding tube for her child

In this Zoom interview with CPN, Michelle — mother of Alex (age 7) and Julianna, who had a severe form of Charcot-Marie-Tooth disease and died at age 5 — shares how the feeding tube intervention was to help Julianna get nutrition but led to medical complications. Julianna went from the G-Tube to the GJ-Tube.

SHARE

4 / 16

Related Resources