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Theme: Family Planning

Genetic Counseling and Pediatric Rare Disease: Advice doesn't exist; being present with the family.

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Genetic Counseling and Pediatric Rare Disease: Advice doesn't exist; being present with the family.

Genetic Counseling and Pediatric Rare Disease: Advice doesn't exist; being present with the family.

A genetic counselor talks about how she works with families of children with rare genetic disease, appreciating that they are all unique with individual needs, and how it is largely about listening.

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