Theme: Extended Family and Friends

Some support tips for other aunts and uncles

Sharing the news of a genetic diagnosis and what i…

Support in the home: Having the support of close f…

Being the Aunt: It wasn’t easy but I wanted to b…

Being the Aunt: Staying with his body.

Navigating Friends

Navigating the grandparents: It’s an adjustment …

Mom to Grandma “I remember us talking about how …

“I learned you can’t take care of the …

Going to the affected families conference: “…

“I was just a grandmother.”

My mother: “The biggest support she gave me …