Theme: Extended Family and Friends

Sharing the news of a genetic diagnosis ...

Support in the home: Having the support ...

Being the Aunt: It wasn’t easy but I w...

Being the Aunt: Staying with his body.

Navigating Friends

Navigating the grandparents: It’s an a...

“I was just a grandmother.”

My mother: “The biggest support sh...

A grandmother on her daughter: “She sa...

Delivering the diagnosis to her mother: ...

The other grandparents – “We were sh...

Mom and Grandmother: My mom had no opini...