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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Dads

We came to the realization that this is the path we’re walking and there is nothing to be done about that.

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We came to the realization that this is the path we’re walking and there is nothing to be done about that.

We came to the realization that this is the path we’re walking and there is nothing to be done about that.

Parents of a little girl diagnosed with fatal Gaucher Type 2 talk about how impossible it seemed that there was nothing to be done to cure their daughter but, with time and digging for information, came to accept the fact that the science just wasn’t there.

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