Theme: Clinical Trial: Decision-Making

Everyone who participates in rare disease research is a medical hero

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Everyone who participates in rare disease research is a medical hero

In this video, a patient advocate in biotechnology talks about how the families who participate in research are pioneers and medical heroes. Patients’ willingness to take the risk and contribute is the only way forward research. “We (biotech) can build a rocket ship to take us to space, but we can’t fly it. We need a volunteer.”