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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Clinical Trial: Decision-Making

Abby is helping other families

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Abby is helping other families

Abby is helping other families

The mother and father of a 5-year old with Leigh’s Disease, a mitochondrial condition, talk about how they have adjusted to caring for Abby and how they have taken to advocacy and sharing so they can help other families. Abby is inspiring people. And her participation in the study drug is going to set up the next family that comes along.

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