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Navigating Medical Complexity Coping With Loss Neurojourney

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Home > Bereavement The Grief Experience > Themes

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Theme: Bereavement: The Grief Experience

Something broke inside of me when he died.

Page: 4 of 5

Something broke inside of me when he died.

Something broke inside of me when he died.

The bereaved parents of a baby son who was born with Arteriovenous Malformation (AVM) talk about how they think of, hold, and cope with their loss. “You have to be present in the room and experience your child actually dying to understand that feeling but you do lose a very large part of your sense of self and safety and understanding of just who you are in the world and I think even lost in the sense of understanding what the world is because a lot of that has been thrown into question for us.”

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