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Navigating Medical Complexity Coping With Loss Neurojourney

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Home > Anticipatory Grief > Themes

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Theme: Anticipatory grief

The benefit and blessing of going day-to-day

Page: 6 of 6

The benefit and blessing of going day-to-day

The benefit and blessing of going day-to-day

Parents of a 22-month old with leukodsytrophy and 6 other children talk about how You Just Do It. If you actually step back and reflect on what you’re doing, it is overwhelming. Their daughter has taught them endurance and the importance of focusing on the present.

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