Theme: Advocating for your child

There’s a shift that happens emotionally.

Decision-Making: My biggest fear was getting caugh…

I need his life to be good NOW.

You Can Say, “That’s Enough.”

She is an individual, not a diagnosis.

MD: Parents–Don’t underestimate the import…

As a parent, you know instinctively in your gut th…

We said, “We want to be part of the Solution.”

What gets to me is all the medical appointments.

Just because your child is seriously ill, doesn’…

The Medical Team: You want a sense of being heard.

It becomes about a good fit.