Theme: Advocating for your child

Mom: I know that he has completed everyt...

Frankie: Losing his voice but still comm...

“I would like clinicians to know that ...

A couple’s advice to fellow parents: �...

Our son’s team of medical champions (T...

How we advocate for our son. “We are o...

We look for physicians who will be champ...

We just want a conversation about option...

“My race does play a role in my need t...

Feeling as a PARENT at home vs Speaking ...

A mother’s need to get as much informa...

Advocating for their child can be tricky...