Theme: Advocating for your child

Being my son’s advocate: I can spend all my time researching; the medical world leans on the word ‘reasonable.’

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Being my son’s advocate: I can spend all my time researching; the medical world leans on the word ‘reasonable.’

A feisty mom describes how she goes deep on researching her son’s symptoms and considering the pros and cons of tests and potential treatments, whether they apply to her son, and whether insurance would consider the procedure/treatment reasonable. She tells the story of how she had to pressure a doctor to run a swallow study test because of her conviction that her son was aspirating. “What you’re looking to do is it reasonable to conduct a test, would insurance pay for it, can we rule it out so that we can then go hunting for something else? So if you have those three things in a row, a doctor more than likely will actually help you if they’re a good partner.”