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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Access and Equity

Families need help navigating this health care system.

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Families need help navigating this health care system.

Families need help navigating this health care system.

The mother of a young boy who is very medically complex describes the ways in which the health care system is burdensome for parents – gaps in coverage for nursing, miscommunication between hospital billing and insurers, gaps in information provided about community resources.

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