Theme: Access and Equity

Distrust: We have given parents a lot of reasons to think there is not a partnership there. We don’t communicate as we should: we don’t ask for permission; we aren’t transparent with information.

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Distrust: We have given parents a lot of reasons to think there is not a partnership there. We don’t communicate as we should: we don’t ask for permission; we aren’t transparent with information.

A pediatric palliative care physician shares her perspective on why families may not first trust their child’s medical team and how she never assumes there will automatically be that trust. “It’s a system that doesn’t always create an environment of safety.”