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Social and Emotional Considerations
Caring for a child with SNI includes tending to the emotional and psychological needs of your child, yourself, and your family. Here you will find ideas and tools for navigating the present, planning for the future, and making space for the emotions that come with parenting a child with significant needs.
Each child and family is unique, and you may find yourself grappling with these considerations earlier or later in the arc of your child’s life.
Adapting to Diagnosis
Collecting information, care and support as issues emerge for your child and your journey begins.
Building Strengths
Maximizing your child’s core skills and family resiliency to develop a foundation for the journey.
Adjusting to Changes
Making decisions and adapting to your child’s evolving baseline throughout the journey.
Navigating Decline
Re-orienting goals and finding support alongside declines in your child’s condition, preparing you for the end of your child’s journey.
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Goals of Care
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Anticipatory Grief
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Communicating the Diagnosis
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Guilt and Regret
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Partnership and Marriage
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Family Planning
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Caregiver Well-being
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Supporting the Siblings
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Siblings at End of Life
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Extended Family and Friends
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Spirituality and Faith
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Financial Planning
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Work
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Out-of-Home Placement
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Transition to Adulthood
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Advance Care Planning and End of Life
-
Goals of Care
-
Anticipatory Grief
-
Communicating the Diagnosis
-
Guilt and Regret
-
Partnership and Marriage
-
Family Planning
-
Caregiver Well-being
-
Supporting the Siblings
-
Siblings at End of Life
-
Extended Family and Friends
-
Spirituality and Faith
-
Financial Planning
-
Work
-
Out-of-Home Placement
-
Transition to Adulthood
-
Advance Care Planning and End of Life
