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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Hear from and learn from fellow parents and clinicians in videos, guides and blog posts.

80 resources found

Shared-decision-making Clear All

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80 resources found

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Who’s Your Quarterback? When Growing Up Means Replacing the Team and the QB

Who’s Your Quarterback? When Growing Up Means Replacing the Team and the QB

Parent Perspectives: Insights into Medical Decision-Making

Parent Perspectives: Insights into Medical Decision-Making

Seeking Wisdom: Navigating Decisions on Behalf of a Child with SNI

Seeking Wisdom: Navigating Decisions on Behalf of a Child with SNI

Cuando Usted y los Clínicos de Su Hijo Tengan Ideas o Estilos Diferentes: Cómo Encontrar una Manera de Proceder

Cuando Usted y los Clínicos de Su Hijo Tengan Ideas o Estilos Diferentes: Cómo Encontrar una Manera de Pro...

Parking Lots and Procedure Rooms

Parking Lots and Procedure Rooms

Decision-making over 14 months: Our goal was always for her to feel loved and be out of the hospital, at home, as much as possible.

Decision-making over 14 months: Our goal was always for her to feel loved and be out of the hospital, at hom...

Shared Decision-Making: When parents ask the doctor for a recommendation.

Shared Decision-Making: When parents ask the doctor for a recommendation.

An MD on addressing a parent’s fear of making the wrong decision for their child.

An MD on addressing a parent’s fear of making the wrong decision for their child.

Perinatal palliative care: “Parents can hold that [uncertainty] space better than we clinicians do.”

Perinatal palliative care: “Parents can hold that [uncertainty] space better than we clinicians do.”

When You and Your Child’s Clinicians Have Different Ideas or Styles: How To Find a Way Forward

When You and Your Child’s Clinicians Have Different Ideas or Styles: How To Find a Way Forward

Framework for Sharing Decision-Making with Your Child’s Clinicians

Framework for Sharing Decision-Making with Your Child’s Clinicians

A physician’s thoughts for a parent who is afraid of making ‘a wrong decision.’

A physician’s thoughts for a parent who is afraid of making ‘a wrong decision.’