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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

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Hear from and learn from fellow parents and clinicians in videos, guides and blog posts.

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2131 resources found

Page: 110 of 178

The road to diagnosis … Do we wish we had known earlier? (CLN2/Batten)

The road to diagnosis … Do we wish we had known earlier? (CLN2/Batten)

Spinal Fusion: Two Children, Two Moms, Two Different Decisions

Spinal Fusion: Two Children, Two Moms, Two Different Decisions

Tracheostomy / Trach: Two Children, Two Moms, Two Different Decisions

Tracheostomy / Trach: Two Children, Two Moms, Two Different Decisions

A Sister Outside the Inner Circle but Close to the Heart

A Sister Outside the Inner Circle but Close to the Heart

The Other Side of Innocence

The Other Side of Innocence

Ian Decides: A Mother Shares How Her Son Participated in Decisions About His Care

Ian Decides: A Mother Shares How Her Son Participated in Decisions About His Care

Collaborative Goal-Setting

Collaborative Goal-Setting

The Only Certainty was More Uncertainty

The Only Certainty was More Uncertainty

Finding Support: My brother can help me get through this.

Finding Support: My brother can help me get through this.

Rare Disease Day: Treatment–Even Cure–Is Necessary, but Not Sufficient

Rare Disease Day: Treatment–Even Cure–Is Necessary, but Not Sufficient

A bereaved father on the pressure parents feel to be changed to perfect.

A bereaved father on the pressure parents feel to be changed to perfect.

Twin brothers and fathers, Tay-Sachs, bereavement, and their children’s legacy

Twin brothers and fathers, Tay-Sachs, bereavement, and their children’s legacy

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