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Navigating Medical Complexity Coping With Loss Neurojourney

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Media Library Navigating Medical Complexity Coping With Loss

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Tag: Advocacy/Policy

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Advocating for CJ Always (HLHS/Kabuki Syndrome)

Advocating for CJ Always (HLHS/Kabuki Syndrome)

My Epic Self-Care Fail and What I Learned from It

My Epic Self-Care Fail and What I Learned from It

Advocacy, Battle Scars, & Pieces of Sanity

Advocacy, Battle Scars, & Pieces of Sanity

September is Childhood Cancer Awareness Month; CPN Welcomes Our Newest Blogger in Residence

September is Childhood Cancer Awareness Month; CPN Welcomes Our Newest Blogger in Residence

What anguish looks like: when parents realize they aren’t in control. But neither is anyone else.

What anguish looks like: when parents realize they aren’t in control. But neither is anyone else.

Your Voice – Family Advisory Council

Your Voice – Family Advisory Council

A Shared Space, A Shared Endeavor

A Shared Space, A Shared Endeavor

A Letter to the Medical Residents at My Son’s Hospital

A Letter to the Medical Residents at My Son’s Hospital

The Body and Soul of Care for Our Children

The Body and Soul of Care for Our Children

E pluribus unum, one out of many – advocating for all.

E pluribus unum, one out of many – advocating for all.

Providers focus on the child and family experience.

Providers focus on the child and family experience.

Pediatric Palliative Care is a Social Issue

Pediatric Palliative Care is a Social Issue