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About
About
About Courageous Parents Network
Staff and Board
Job Openings
Parent Champion Program
Donors
Annual Report
Speaking Engagements
Courageous Provider Award
Research and Publications
Falmouth Road Race
Initiatives
Initiatives
Navigating Medical Complexity
NeuroJourney
Coping with Loss
Blog
Media Library
Events
Clinicians / Educators
Search
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Two children with rare disease in one family; Two different deaths.
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