Skip to content
Contact
Donate
About
About Courageous Parents Network
Staff and Board
Donors
Annual Report
Parent Champions
Speaking Engagements
Courageous Provider Award
Research and Publications
Initiatives
Navigating Medical Complexity
Coping with Loss
NeuroJourney
Blog
Media Library
Events
Clinicians / Educators
Search
Close
MENU
CLOSE
Courageous Parents Network
About
About
About Courageous Parents Network
Staff and Board
Donors
Annual Report
Parent Champions
Speaking Engagements
Courageous Provider Award
Research and Publications
Initiatives
Initiatives
Navigating Medical Complexity
Coping with Loss
NeuroJourney
Blog
Media Library
Events
Clinicians / Educators
Search
Contact
Donate
Search entire library or by microsite
Media Library
Navigating Medical Complexity
Coping With Loss
GO
Click here for NeuroJourney resources
Search
Search entire library or by microsite
Media Library
Navigating Medical Complexity
Coping With Loss
Search
Click here for NeuroJourney resources
Home
>
Videos
>
There is no road map when the diagnosis is so rare.
SHARE
Share this page
Facebook
LinkedIn
Email
Page URL:
Copy
Video
There is no road map when the diagnosis is so rare.
SHARE
Share this page
Facebook
LinkedIn
Email
Page URL:
Copy
