Skip to content
Newsletter Signup
Contact
Donate
About
About Courageous Parents Network
Staff and Board
Job Openings
Parent Champion Program
Donors
Annual Report
Speaking Engagements
Courageous Provider Award
Research and Publications
Falmouth Road Race
Initiatives
Navigating Medical Complexity
NeuroJourney
Coping with Loss
Blog
Media Library
Events
Clinicians / Educators
Search
Close
Menu
CLOSE
Courageous Parents Network
About
About
About Courageous Parents Network
Staff and Board
Job Openings
Parent Champion Program
Donors
Annual Report
Speaking Engagements
Courageous Provider Award
Research and Publications
Falmouth Road Race
Initiatives
Initiatives
Navigating Medical Complexity
NeuroJourney
Coping with Loss
Blog
Media Library
Events
Clinicians / Educators
Search
Contact
Donate
Newsletter Signup
Search entire library or by microsite
Media Library
Navigating Medical Complexity
Coping With Loss
Neurojourney
GO
Search
Search entire library or by microsite
Media Library
Navigating Medical Complexity
Coping With Loss
Search
Click here for NeuroJourney resources
Home
>
Videos
>
There is no planning. You’re just there, life on hold. (Or Everything is put on hold until his life ends.)
SHARE
Share this page
Facebook
LinkedIn
Email
Page URL:
Copy
Video
SHARE
Share this page
Facebook
LinkedIn
Email
Page URL:
Copy
There is no planning. You’re just there, life on hold. (Or Everything is put on hold until his life ends.)
SHARE
Share this page
Facebook
LinkedIn
Email
Page URL:
Copy
close banner
