Decision-making about quality of life, with no judgement: “The medical field has advancements that our ethics haven’t quite caught up with.”

Parents Nate and Katherine describe how they gathered information from others to inform their decisions after birth. The feeding tube was a hard decision. They talked with other parents, and a palliative care doctor from their church, and read from Facebook groups. Stories of others helped them see what his quality of life was likely to be. Kate talks about her fear of regret.