A medically complex child ages out: the disheartening challenge of transitioning to adult services.

“It was a shock to learn there weren’t necessarily medical professionals trained to care for adults with disabilities.” June MSW, LICSW, ACHP-SW, mother of Katie (28), who is medically complex and likely has Rett Syndrome, describes her disheartening surprise at discovering how few options there were for her daughter when she transitioned to adult services. It took years to get connected to the right people; luckily she had time to figure it out.