CPN | Ben and Allison

Ben and Allison

Ben and Allison, parents of Julia (7) and Wilbur (2) and Beckett and Clementine who died at age 3 and 2 respectively from a rare metabolic acidosis disorder.

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Can we help you:

Honor this courageous family and Becket and Clementine with a donation that supports our work and helps other families tell their stories to support those that follow.


Your feedback matters!

We’re conducting a survey this month with parents and caregivers, and we’d love to hear from you. How have you used CPN? What do you find valuable? How can we improve?

As our way of saying thanks, all who finish the survey will receive a $10 Starbucks e-gift card.

If you haven’t already taken the survey, please do so by clicking the link below: