CPN | Barb and John

Barb and John

Parents of Jake (18 at the time of this interview) who has Dravet syndrome and Secondary Mitochondrial Dysfunction, and older son Ryan.

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Can we help you:

Honor Ed Balicki and his family, including his courageous daughter Barb and grandson Jake, with a donation that supports our work and helps other families.


Your feedback matters!

We’re conducting a survey this month with parents and caregivers, and we’d love to hear from you. How have you used CPN? What do you find valuable? How can we improve?

As our way of saying thanks, all who finish the survey will receive a $10 Starbucks e-gift card.

If you haven’t already taken the survey, please do so by clicking the link below: