Living with Uncertainty

Parents on the burden of chronic caregiv...

There was never a thought in my mind tha...

A prenatal diagnosis of Congenital Diaph...

Sydney has totally changed the way I loo...

A neurologist on the emotional and pract...

“Neurologists have this bad reputation...

Your day-to-day life can be a happy plac...

I’m going to keep moving forward.

I wonder if I project my own feelings on...

I had to learn to live in the moment and...

Something always comes up. You do it aga...

It’s a suffocating feeling.

We didn’t let ourselves think about th...

Focus on the Here and Now

The unknown is the hardest part, not the...

There is no planning. You’re just ther...

The benefit and blessing of going day-to...

We don’t know the end of the story but...

When I feel myself spiral downward, I ha...

You get to the point where this just Is ...

I can only think out a few years.

You have to have a sense of humor.

Just because your child is seriously ill...

It’s hard to do but we do it.