Maturing into parenting a medically comp...

Becoming OK with the uncertainty of his ...

In the Zoom Room Recording: What does a ...

Parenting a medically complex child and ...

Undiagnosed: “You can’t put your lif...

Undiagnosed: “28 years and we still do...

Parenting a Medically Complex Child: I c...

Checking in with Lars and Elizabeth

They're still learning about the progres...

I’m feeling trapped. But we’re getti...

I’ve learned …

I don’t know what impact Jake’s deat...

The lack of diagnosis frustrates me. I�...

I can only think out a few years.

Decision-Making: My biggest fear was get...

How is this my life?

What if something happens to one of us, ...

It’s hard to do but we do it.