Telling the child&#8217;s story

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"Noah is a trainwreck on paper but he is so much more than that." A mother's high alert vigilance and advocacy for 14 years

The mother of a 14-year-old boy with medical complexity talks about the frustrations that sometimes arise when working with new clinicians who make assumptions about what her son needs before consulting her.

"Noah is a trainwreck on paper but he is...
Andy, a diagnosis at birth. “I immedia...
Mom, Natalie, introduces the story of he...
A Canavan mom on learning the diagnosis ...
Julianna’s beginning: Charcot-Marie-To...
Telling our son’s story
They were like an old couple: The Gauvin...

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Video Collection

Telling the child’s story

"Noah is a trainwreck on paper but he is so much more than that." A mother's high alert vigilance and advocacy for 14 years

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