Telling the child’s story

“Noah is a trainwreck on paper but he is so much more than that.” A mother’s high alert vigilance and advocacy for 14 years

The mother of a 14-year-old boy with medical complexity talks about the frustrations that sometimes arise when working with new clinicians who make assumptions about what her son needs before consulting her.

“Noah is a trainwreck on paper but he ...
Andy, a diagnosis at birth. “I immedia...
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Telling our son’s story
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Telling the child’s story

“Noah is a trainwreck on paper but he is so much more than that.” A mother’s high alert vigilance and advocacy for 14 years

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