Clinical Trials: A mom: Don’t feel rus...

Clinical Trials: Assent to Participate: ...

Clinical Trials: Mom finds out about a t...

Clinical Trials: Excitement to participa...

Clinical Trials: Restrictions in the Inf...

Clinical Trials: Prioritizing therapies ...

Clinical Trials: Two children screened, ...

Clinical Trials: Recruitment and Pre-Scr...

The Screening Visit: You Will Be Asked t...

Understanding the Why Behind Inclusion a...

Informed consent. Take it seriously.

Clinical Trials: Informed Consent define...

Clinical Trials: A Rare Disease Mom-Just...

Clinical Trials: You still need to be an...

Clinical Trials: We really felt like we ...

Clinical Trials: Our son and family’s ...