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Media Library Navigating Medical Complexity Coping With Loss

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Home > All Videos > Videos: Tracheostomy

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Theme: Tracheostomy

You have to make a decision and they’re both bad choices.

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You have to make a decision and they’re both bad choices.

You have to make a decision and they’re both bad choices.

The mom of a 12-year old boy with SMA1 describes the challenging decision-making process around her son receiving a trach: The way she thought about it, his medicalization that forced the decision, and where she found her answer. She prayed to God for guidance about what was best for her son.

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