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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Siblings

We postponed Make-a-Wish until Jessica was old enough to remember it.

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We postponed Make-a-Wish until Jessica was old enough to remember it.

We postponed Make-a-Wish until Jessica was old enough to remember it.

The mom of two daughters, the younger one who has the life-limiting illness Canavan, talks about how the grief they first experienced with the diagnosis, and then how they didn’t want to take the special trip until their older daughter was old enough to remember it. “I prayed over the years that Rachel would live long enough so that we could go to DisneyWorld and Jessica would have the memories.”

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