Theme: Receiving the Diagnosis

Docs didn’t look at the Whole Child: I...

The doctor was very gentle and also clea...

The Diagnostic Odyssey: It never occurre...

Adapting to the Diagnosis: No Heroics,Fo...

So I started questioning …. And it was...

SMA ran in the family, and then it hit u...

I wish there had been more support and f...

Chaplain: “When this happens to me, to...

Fundraising for Research: I was transpor...

Families aren’t ready for all the ...

Telling Jake about his sister’s illnes...

I’m like, I don’t need a bucket list...