Theme: Prenatal Diagnosis

A diagnosis in-utero of Trisomy 18: Being told, Don’t get too attached. He is going to die. We wanted a different conversation.

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A diagnosis in-utero of Trisomy 18: Being told, Don’t get too attached. He is going to die. We wanted a different conversation.

Parents of a child with Trisomy 18 talk about how clinicians set their expectations that their son would not live; and how it left only them as parents to advocate for him to live. “When you try to keep hope, and they keep trying to keep it away from you because of the statistics, it is hard. We wanted a different conversation. . .Were there opportunities to think differently?” Mom share that it made her feel angry to suddenly feel abandoned by the medical community. “I didn’t know you could refuse care to a family because of a diagnosis. It blew my mind.”