Theme: Prenatal Diagnosis
Todos los futuros padres viven con cierto grado de incertidumbre, pero el conocimiento de una condición fetal que limita la vida trae un nuevo nivel de ansiedad y estrés. Esta Guía de Courageous Parents Network proporciona cuatro vías de atención después del diagnóstico de una afección fetal que limita la vida y le permite considerar qué vía, o qué aspectos de una vía, funcionarían mejor para su familia.
Theme: Prenatal Diagnosis
All expectant parents live with some degree of uncertainty, but the knowledge of a life-limiting fetal condition brings a new level of anxiety and stress. This Courageous Parents Network Guide provides four pathways for care following the diagnosis of a life-limiting fetal condition and allows you to consider which pathway, or which aspects of a pathway, would work best for your family.
Theme: Prenatal Diagnosis
Theme: Prenatal Diagnosis
Fran McCarthy, MS, RNC-NIC,CPLC frames how perinatal palliative care providers can – or rather should – both ally with the family and their wishes while also not offering unfair hope or expectations.
Theme: Prenatal Diagnosis
Fran McCarthy, MS, RNC-NIC,CPLC stresses that intensive care and palliative care can be concurrent, especially in the NICU when the family is working for time and getting the baby home. She also notes how important it is to help moms hold their babies even when they are so fragile.
Theme: Prenatal Diagnosis
Theme: Prenatal Diagnosis
CPN’s Blyth Lord in conversation with Dr. Natasha Henner, a
Neonatologist and Pediatric and Perinatal Palliative Care physician at Lurie Children’s Hospital of Chicago, about how perinatal palliative care accompanies parents from a fetal diagnosis onwards. this far ranging conversation includes discussion about supporting all decisions by parents, living into uncertainty, looking beyond the data to make space for what the individual baby may do, setting parents’ expectations, and believing that with the right support, families can experience the right outcomes available to them.
Theme: Prenatal Diagnosis
Theme: Prenatal Diagnosis
Theme: Prenatal Diagnosis
A perinatal palliative care and Neonatologist, Dr. Natasha Henner, describes how she supports parents considering all the options and decisions for their (un)born child. She asks them about their history of decision-making, reminds them of the power of their ‘knowing’ (there’s no such thing as a wrong decision), tells them to ask for a PAUSE if they’re feeling pressure from an external person (provider, family member, social media group).
Theme: Prenatal Diagnosis
A perinatal palliative care MD and Neonatalogist stresses that each baby is different. Data helps predict but we can’t predict where in the data this baby will fall. “It is an imperfect journey. If we knew the right thing to do, we’d do it all the time. … You have to look at this baby, talk to this surgeon, talk to that surgeon. And so, maybe in that equation we would choose the wrong thing, it’s possible. Not because we’re flawed as individuals, but the complexity of this care is such that you’re bound to get it wrong. And a lot of the time we get it right because people are bright and everyone wants to do the right thing, and we’re going to think about it 10 times before we actually do it.”